Citizen Advocacy organisations

Citizen Advocacy organisations (Citizen Advocacy programs/programmes) seek to cause benefit by reconnecting people who have become isolated from the ordinary community. Their practice was defined in two key documents: CAPE[1] in 1980 and Learning From Citizen Advocacy Programs[2] in 1987. The theoretical foundation of Citizen Advocacy is found in Citizen Advocacy and protective services for the impaired and handicapped. [3] (See also Wolf Wolfensberger.) A central idea on which this practice is based is that the devaluation of a person or group by society has profoundly negative effects on their lives.[4] Citizen Advocacy organisations seek to challenge this devaluation by connecting a 'devalued' person with a 'valued' person, prompting the community into valuing the 'devalued' person. It's also expected that the 'valued person' (very often called a Citizen Advocate) will be likely to (and will be encouraged to) stand up for the rights and interests of the other person. In explaining how strongly they will do so it's often said that they will do so "as if [the rights and interests] were one's own". It's seen the whole activity will be of benefit not just to the devalued person, but to the valued person, the group of people that this devalued person has been seen to belong to, and the community as a whole.

Key ideas

At the heart of the work of a Citizen Advocacy organisation is the belief that how well an individual or group is valued by society (as a whole) affects how society treats them.

If an individual or group is seen as having value then society (as a whole) will treat them well. The result that they will have the full benefit of being part of that society.
If an individual or group is identified by society as 'different', and is seen as having less value (than everyone else) then society will treat them poorly. For instance they will be disempowered and excluded, made into scapegoats, segregated, and put with others seen to be like them.[5][6]

This idea is seen as particularly powerful in the context of certain groups of people whom society identifies (incorrectly) as being somehow fundamentally negatively different from, and of lower value than, ordinary people (for instance 'the mentally ill' or 'people with special needs' or 'autistic people' or 'asylum seekers').

Citizen Advocacy organisations seek to cause benefit by connecting individual people who have been excluded and devalued with someone generally seen by society as being valued.[1][2][7] There are some clear immediate effects on the person's exclusion and sense of self-worth. But also very important are the anticipated effects brought about when the ordinary community sees that a 'valued' person has an ordinary relationship with this person (e.g. a friendship), and that this 'valued' person sees them as an equal (i.e. also a 'valued' person). However, the anticipated effects are even wider than this, in that it is assumed that society (in general) will extend their conclusions to cover the group of people whom the individual has been seen to belong to.

Simplified illustrative example

A Citizen Advocacy organisation connects a person 'labelled'[8] as having a 'learning disability' ('developmental disability') – his name is Helios - with a person of standing in their local community (for instance a well liked shopkeeper) – whose name is Alex. These two people develop a friendship. Helios and Alex are seen together, and other people get to know Helios. Alex and Helios behave as friends, and describe themselves as friends. While they sometimes seek support from the Citizen Advocacy organisation, they do not speak about being connected to it, other than to mention that it was this organisation that introduced them.
People in the community get to know Helios through Alex, which is of immediate benefit to Helios. When Alex finds out that Helios is living in poor housing conditions, he and several other people help to work with Helios to find private rented accommodation and to secure the support he needs to live there.
Several people write to the local authorities and politicians to complain about how people with learning disabilities are being treated. Because the politicians see that it is ordinary members of the public who are interested in this issue, they ensure that the situation improves.

Stories of actual Citizen Advocacy relationships have been written about in many contexts. One set of such stories is found in One person at a time: Citizen Advocacy for people with disabilities.[9]

The challenge of creating real relationships

The desired effects of this work, in all senses, arise from the naturalness and personal nature of the relationships that a Citizen Advocacy organisation is able to create. One of the key challenges for a Citizen Advocacy organisation is that this relies on the art of being able to identify two people (one 'valued' and one 'devalued') who seem likely to make a personal connection - and on bringing them together in a way which leads to such a relationship.

There are many actions and influences that can undermine these efforts. Problems tend to revolve around existing social expectations for the 'devalued' person. Often society at large will anticipate that this person is not really worth knowing, and has little to offer - but that they might be helped through paid services or with the assistance of volunteers.[10] Working in an environment where such expectations are the norm, it becomes easy for an organisations practice to drift towards fitting in with them. An organisation might instead find themselves creating relationships where the 'valued' person is seen to be (or sees themselves to be) a volunteer, at which point the activity has become a fundamentally different one. In this case the effects of the work may even be to add to the devaluation of the 'devalued' person (however effectively the 'volunteer' helps the individual with particular problems or issues in their life).

Sources of confusion and misunderstanding

There are several key sources of misunderstanding and confusion complicating the work of Citizen Advocacy organisations.

The first occurs when the founding ideas of this work are misunderstood. In particular, some people believe (incorrectly) that Citizen Advocacy organisations are based on the idea of value 'flowing' from a 'valued' person to a 'devalued' person (as if value was connected to the person rather than being a judgement from outside).

A second, somewhat similar, confusion is caused by people misunderstanding what is implied by 'valued'. For instance it is sometimes said that Citizen Advocacy organisations believe that a valued person needs be white, with money, heterosexual and so on. John O'Brien directly contradicts this in the introduction to 'Learning from Citizen Advocacy Programs' when he writes:

"A 'valued person' is someone who is richly connected to the networks of people and associations that make up community life... CA experience shows that people are rich in these valuable capacities regardless of social class, race, sex, and level of formal education."[2]

A third misunderstanding arises from the name 'Citizen Advocacy' since the word 'advocacy' has broad uses. In the UK it is strongly associated with the legal task of representing a person in a court, even more so in Scotland.[11] The task of an 'advocate' is understood to be one of representing (or supporting) a person so as to ensure that their point of view is heard or their rights upheld. This causes particular confusion because 'advocating' in this way is a common action that the 'valued' person may undertake.

A fourth misunderstanding arises from the common use of the phrase "one to one relationship" in Citizen Advocacy circles. This was originally used to explain that the 'valued' person and 'devalued' person were being introduced personally, not in a (one to many) volunteer to client relationship. In fact, it is hoped that initial introductions by Citizen Advocacy organisations will lead to the 'devalued' and excluded person being re-included and reconnected (i.e. to many people).

Results of confusion and misunderstanding

Since the creation of the concept of the Citizen Advocacy organisation, these misunderstandings have had a number of effects. The key one is that many organisations use the title 'citizen advocacy' to refer to different forms of activity. For instance alternative activities include:

The first of these activities in particular, has been found to have some benefits for some people, and often such organisations in the UK now refer to themselves as practising 'Independent Advocacy'"[12] using volunteers. However confusion is particularly apparent when this kind of organisation seeks to support people by using volunteers in the longer term.

Since these organisations are practising a different activity the founding documents behind the idea of a citizen advocacy organisation often do not fit with their work.[13]

These developments raise difficult questions about the definition of a Citizen Advocacy organisation (program). If the practice of most organisations which use the title is no longer in line with the founding documents, is it correct to say that they are no longer Citizen Advocacy organisations? Or is it correct to say that the practice of Citizen Advocacy organisations has now changed so that the founding documents no longer fit it?

Key principles

The founding principles [1][2][3][13] behind the work of a Citizen Advocacy organisation include many focused on protecting the personal nature of the relationships created:

There are also principles directed at ensuring that the organisation's work is not limited by conflicting interests, and that it is not seen to have conflicting interests:

Further principles include:

Behind these principles lies the firm belief that people who are currently devalued and excluded by society are of equal worth, and very much worth knowing personally. It is seen that society as a whole will benefit from these people being fully included,[13] and that exclusion occurs because of the social response to groups of people, not because that individual can not be included.

The work of a Citizen Advocacy organisation is fundamentally different from that of organisations that seek to help people cope with their devaluation and exclusion (in that it instead uses a practical method to ensure the person is no longer devalued and excluded). Indeed, one of the key reasons that the idea of the citizen advocacy organisation was created is that society's response to the problems of devaluation and exclusion can be to create service systems which, while trying to help, actually further exclude and devalue people.

References

  1. 1 2 3 John O'Brien and Wolf Wolfensberger, CAPE Standards for Citizen Advocacy Program Evaluation (1988)
  2. 1 2 3 4 Learning from Citizen Advocacy Programs (including a revised short form of CAPE), John O'Brien (1987), Georgia Advocacy Office Inc.
  3. 1 2 Wolfensberger, W. & Zauha, H. (1973). Citizen Advocacy and protective services for the impaired and handicapped. Toronto, ON: National Institute on Mental Retardation.
  4. ↑ Wolfensberger, W. (1998). A brief introduction to Social Role Valorization: A high-order concept for addressing the plight of societally devalued people, and for structuring human services (3rd ed.). Syracuse, NY: Syracuse University Training Institute for Human Service Planning, Leadership & Change Agentry.
  5. ↑ An overview of Social Role Valorization Theory, Joe Osburn, at www.diligio.com/osburn.htm
  6. ↑ The Diligeo Formulation of SRV, Paul Jenkins, at www.diligio.com
  7. ↑ Principles and Standards in Independent Advocacy organisations and groups, Advocacy 2000 project, Edinburgh Scotland, 2002, p52 (available online)
  8. ↑ The term 'labelled' is common shorthand for the process in which society identifies a group of people as different and of less value, and provides a name for that different group. See also Labeling theory, and Social role valorization.
  9. ↑ Hildebrand, A.J. (2004). One person at a time: Citizen Advocacy for people with disabilities. Newton, MA: Brookline Books. ISBN 978-1-57129-093-9.
  10. ↑ Why it is neither necessary nor desirable for Citizen Advocates to receive technical training as a pre-condition to the advocacy engagement, by Mitchel Peters, from Inroads, the newsletter of 'Citizen Advocacy Eastern Suburbs' in Perth, Australia (available online).
  11. ↑ Compact Oxford English Dictionary entry for 'Advocate', (available online)
  12. ↑ Principles and Standards in Independent Advocacy organisations and groups, Advocacy 2000 project, Edinburgh Scotland, 2002 (available online)
  13. 1 2 3 4 Assumptions underlying citizen advocacy, Wolf Wolfensberger, 1992 (available online)
  14. 1 2 Standing by another: the power of personal, unpaid commitments, by Mitchel Peters, from Inroads, the newsletter of 'Citizen Advocacy Eastern Suburbs' in Perth, Australia (available online)
  15. ↑ Walking the tightrope: inherent tensions which characterise the key activities of the Citizen Advocacy office, by Mitchel Peters, from Inroads, the newsletter of 'Citizen Advocacy Eastern Suburbs' in Perth, Australia (available online)

External links

Key links are included in the references section. Additional links are below:

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