Pulmonary capillary hemangiomatosis

Pulmonary capillary hemangiomatosis is a rare cause of pulmonary hypertension which occurs predominantly in young adults.[1][2]

Patient registry

Pulmonary capillary hemangiomatosis patients, families, and caregivers are encouraged to join the NIH Rare Lung Diseases Consortium Contact Registry. This is a privacy protected site that provides up-to-date information for individuals interested in the latest scientific news, trials, and treatments related to rare lung diseases.

References

  1. ↑ Masur Y, Remberger K, Hoefer M (1996). "Pulmonary capillary hemangiomatosis as a rare cause of pulmonary hypertension.". Pathol Res Pract. 192 (3): 290–5; discussion 296–9. doi:10.1016/S0344-0338(96)80232-9. PMID 8739476.
  2. ↑ El-Gabaly M, Farver CF, Budev MA, Mohammed TL (2007). "Pulmonary capillary hemangiomatosis imaging findings and literature update.". J Comput Assist Tomogr. 31 (4): 608–10. doi:10.1097/01.rct.0000284393.76073.87. PMID 17882042.


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